When people with colorectal cancer receive chemotherapy, they often struggle with eating well and staying healthy. Researchers in China talked to 17 cancer patients to understand what they knew about nutrition and what help they needed. They found that patients weren’t getting enough good nutrition information from their doctors and hospitals. The study shows that cancer centers need to create better nutrition education programs that are easier to understand and more personalized to each patient’s needs. This could help patients eat better, avoid serious weight loss, and recover faster from their treatment.

The Quick Take

  • What they studied: How well colorectal cancer patients receiving chemotherapy understand nutrition and what nutrition help they actually need from their doctors
  • Who participated: 17 colorectal cancer patients who were actively undergoing chemotherapy at five major hospitals in western China between January and March 2022
  • Key finding: Patients reported not receiving enough good nutrition education and identified five major problems: lack of nutrition knowledge, unclear nutrition advice, inconsistent nutrition guidance from different doctors, difficulty accessing nutrition help, and different nutrition needs that weren’t being addressed
  • What it means for you: If you or a loved one is getting chemotherapy for colorectal cancer, you may benefit from asking your cancer care team specifically about nutrition support. Hospitals should provide clearer, more personalized nutrition guidance to help patients maintain healthy weight and strength during treatment, though this study shows many hospitals aren’t doing this well yet.

The Research Details

This was a qualitative study, which means researchers focused on understanding people’s experiences and opinions rather than collecting numbers. The team interviewed 17 colorectal cancer patients who were actively receiving chemotherapy at five major hospitals in western China. They used purposive sampling, which means they carefully selected patients who could provide detailed information about their nutrition experiences. The researchers conducted one-on-one interviews using a semi-structured format, meaning they asked planned questions but also let patients share their own thoughts and concerns. All interviews were recorded and written out word-for-word, then carefully analyzed by two independent researchers using a computer program called NVivo 12 to find common themes and patterns in what patients said.

Understanding patients’ real experiences with nutrition education is important because it helps doctors and hospitals know what’s actually working and what’s not. By listening to what patients say they need, researchers can design better nutrition programs that will actually help people stay healthy during cancer treatment. This approach is more useful than just guessing what patients need.

This study has both strengths and limitations. Strengths include that two researchers independently reviewed the interviews to reduce bias, and the study was conducted at multiple hospitals rather than just one. However, the study only included 17 patients from one region of China, so the findings may not apply to all cancer patients everywhere. The study is descriptive rather than experimental, meaning it describes what patients experienced but doesn’t test whether a new nutrition program actually works better than current practices.

What the Results Show

The researchers identified five major barriers that prevent colorectal cancer patients from getting good nutrition education. First, patients lacked basic nutrition knowledge and didn’t understand how important nutrition is during chemotherapy. Second, patients had unclear or incorrect beliefs about nutrition, often based on myths rather than medical facts. Third, the nutrition advice they received was inconsistent and not based on current scientific evidence. Fourth, patients faced practical barriers to getting nutrition help, such as difficulty scheduling appointments with nutrition specialists or not knowing where to find this help. Fifth, patients had very different nutrition needs depending on their specific situation, but hospitals weren’t personalizing their education to address these differences.

The study revealed that patients wanted nutrition education delivered in multiple ways—some preferred written materials, others wanted to talk to a specialist, and some wanted group classes. Patients also expressed frustration that different doctors gave them different nutrition advice, which was confusing. Many patients didn’t know that maintaining good nutrition during chemotherapy could help them tolerate treatment better and recover faster. Some patients reported that nutrition education was only offered after they had already lost significant weight or developed serious nutrition problems, rather than being provided as prevention from the start.

This research aligns with other studies showing that cancer patients often don’t receive adequate nutrition support during treatment. Previous research has shown that malnutrition is common in cancer patients and can worsen treatment outcomes, but many hospitals don’t prioritize nutrition education. This study adds to that evidence by specifically documenting what colorectal cancer patients say they’re missing and what would help them.

This study is relatively small with only 17 patients from five hospitals in one region of China, so the findings may not apply to cancer patients in other countries or healthcare systems. The study describes what patients experienced but doesn’t test whether new nutrition programs actually improve patient outcomes. Because patients were selected purposively rather than randomly, there may be some bias in who participated. The study was conducted in 2022, so some details about hospital practices may have changed. Additionally, the study only included patients who were willing to participate in interviews, so it may not represent patients who are too sick or too busy to participate.

The Bottom Line

If you’re receiving chemotherapy for colorectal cancer, ask your cancer care team about nutrition support and consider requesting a referral to a registered dietitian or nutrition specialist. Hospitals should develop comprehensive nutrition education programs that are personalized to each patient’s needs, delivered in multiple formats, and provided early in treatment rather than waiting until problems develop. Healthcare providers should regularly assess whether their nutrition education is actually helping patients. These recommendations are based on patient feedback and current evidence, though more research is needed to test whether specific nutrition programs improve outcomes.

This research is most relevant to colorectal cancer patients undergoing chemotherapy, their families, and healthcare providers at cancer centers. Doctors, nurses, and nutrition specialists should use these findings to improve their nutrition education programs. Hospital administrators should consider whether they’re providing adequate nutrition support resources. While this study focused on colorectal cancer, the findings may also apply to patients with other types of cancer receiving chemotherapy.

Improvements in nutrition education could help patients feel better and maintain strength within weeks of starting treatment. However, seeing major improvements in patient outcomes like reduced weight loss or better treatment tolerance would likely take several months to measure. Long-term benefits like improved recovery and quality of life would be assessed over months to years.

Want to Apply This Research?

  • Track daily food intake and weight weekly during chemotherapy. Record what you eat, how much, and any nutrition-related side effects like nausea or loss of appetite. This data helps you and your healthcare team identify nutrition problems early and adjust your diet as needed.
  • Use the app to set a specific nutrition goal, such as ’eat protein at every meal’ or ‘drink one nutrition supplement daily.’ Set reminders for meal times and nutrition-related appointments. Log questions about nutrition to ask your doctor or dietitian at your next visit.
  • Review your nutrition tracking weekly to identify patterns in what you’re eating and how you’re feeling. Share this information with your cancer care team monthly to adjust your nutrition plan as your treatment progresses. Track changes in energy level, strength, and how well you tolerate chemotherapy to see if better nutrition is helping.

This research describes patients’ experiences with nutrition education during cancer treatment but does not provide medical advice. If you have colorectal cancer or are undergoing chemotherapy, consult with your oncologist and a registered dietitian for personalized nutrition guidance. Nutrition needs vary significantly between individuals based on their specific cancer stage, treatment plan, and health conditions. Do not make major changes to your diet or nutrition without discussing them with your healthcare team first. This study was conducted in China and may not fully apply to healthcare systems in other countries.